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Ketogenic Hot Topics Webinar Series

Breastmilk and Ketogenic Diet Therapy

Dr Elles van der LouwPost-doc Ketogenic Dietitian, Erasmus Medical Center, Sophia Children’s Hospital, Rotterdam, The Netherlands

In this webinar, Dr Elles van der Louw discusses how to support successful breastfeeding in infants whilst on Ketogenic Dietary Therapy including:

  • What we already know 
  • What is current practice 
  • What are the challenges and how to overcome them

Low Ratio, Slow Outpatient Initiation & Maintenance of the Medical Ketogenic Diet

Jennifer Fabe RDKetogenic Diet Program in the Division of Neurology at McMaster Children’s Hospital in Hamilton, Ontario, Canada

The 3 key aims of this webinar were to:

  • Summarize statistics on patients who have been started on the medical ketogenic diet in Canada with the Low and Slow outpatient initiation method 
  • Practice calculations with patient examples using the Low and Slow outpatient initiation method in further detail
  • Address questions about the Low and Slow Outpatient Initiation method

Ketogenic Diet Education in the Digital Era

Tracy CameronKetogenic Diet Co-Ordinator - North of Scotland

As a ketogenic dietitian covering the North of Scotland, Tracy is required to be innovative when it comes to serving the needs of her ketogenic patients and families over this large geographical area. 

In this months Ketogenic Hot Topics webinar, Tracy discusses a recent service improvement project that has been undertaken to develop a new educational pathway utilising digital technology

How do psychological factors impact on adherence?

Dr Stewart RustConsultant Paediatric Clinical Psychologist, Royal Manchester Children’s Hospital

Dr Rust shares his wealth of experience in optimising treatment adherence in patients with epilepsy and/or metabolic disorders including:

  • Why an optimum level of knowledge is key
  • What are the psychological effects of chronic illness and how these may have been further impacted by the current pandemic
  • Tips for effective motivational interviewing

Nutricia KetoUniversity - Navigating Telemedicine: Tips and tricks

Helpful Tips for Telehealth VisitsVanessa Aldaz MPH, RD, CDE 

Ketogenic Diet Admission via ZOOM or TelemedicineZahava Turner MS, RD, CSP, LD

MAD in the Time of COVID-19Stacey Bessone, RDN, LDN

Setting Boundaries and ExpectationsRobyn Blackford, RDN, LDN

Virtual Diet Initiations Using Microsoft Teams® - Lindsey Thompson, PhD, RD, CSP, LD

 

Medicine Management During Ketogenic Diet Therapy

Dr Andreas BrunklausConsultant Paediatric Neurologist and KDT Service Lead, Royal Hospital for Children, Glasgow

Dr Brunklaus explains the benefits of working alongside the patient’s managing neurologist to ensure KDT has the best chance of success. Topics covered include:

  • AEDs and KDT – risk of interactions
  • Weaning AEDs during KDT and when is the right time

Mitochondrial Disease and Ketogenic Diet Therapy

Zoe Simpson - Highly Specialised Paediatric Dietitian, Great Ormond Street Hospital for Children

Zoe presents the theory of how KDT works in mitochondrial disease and shares her own experience of managing patients with mitochondrial disease with KDT. Topics include:

  • An overview of mitochondrial disease and function of mitochondria
  • Summary of the clinical evidence of efficacy of KDT in mitochondrial disease
  • Case study examples

The Ketogenic Diet Induces Epigenetic Changes in GBM

Dr Nelofer SyedSenior Research Fellow, Imperial College London

Here Dr Syed shares her team’s research at Imperial College London into the effect of KD on brain tumours in mice models also including an overview of:

  • Classification and incidence of glioblastoma in humans
  • Current treatment protocols and why prognosis is so poor
  • Cancer as a metabolic disease

Entering the Maze of Neuro-Metabolic Services

Helena ChampionPaediatric Ketogenic Dietitian Cambridge University Hospitals

Camille NewbyPaediatric Metabolic Dietitian at Bristol Royal Hospital for Children

Helena and Camille discuss this controversial topic including:

  • Summary of metabolic/neuro metabolic conditions commonly managed with KDT
  • Results of a mini survey of which medical teams are involved across the UK
  • Training and support available for dietitians

The use of a Ketogenic Diet Support Worker to Enhance Service Provision

Hannah EllisPaediatric Dietitian, Bristol Royal Hospital for Children

In the absence of sufficient KDT services to meet the demand of referrals Hannah discusses how the implementation of a ketogenic DSW has improved service efficiency to safely increase the number of patients managed by Bristol Royal Hospital for Children. Topics covered include:

  • Role and responsibilities of Ketogenic DSW
  • Skills required
  • How to implement a Ketogenic DSW

Ketogenic Diet Therapy: Use in brain tumour management

Susan Wood RDMatthew's Friends Clinics, UK

Neil Bindeman PhDExec. Dir. Primary Care and Community Neurology Society

Sue Wood discusses why there is so much scientific interest into the possibility of managing brain tumours with KDT. Topics covered include:

  • Overview of current clinical evidence
  • Barriers to accessing KDT on NHS
  • The patient experience

Ketogenic Diet Therapy in Status Epilepticus

Dr Archana Desurkar Consultant Paediatric Neurologist and KDT Service Lead

Dr Desurkar shares her first-hand experience of managing paediatric patients with ketogenic dietary therapy (KDT) in this common neurological emergency. Topics covered include:

  • Definitions and incidence of Status Epilepticus, FIRES and NORSE
  • Overview of clinical evidence of efficacy and example case studies
  • Consensus guidelines and practical issues to consider when providing KDT on ICU

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