DMIMD 2023 - NSPKU: National Society for Phenylketonuria – at 50: Past, Present and Future

28 mins
Recorded webinars & presentations by Suzanne Ford
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Recorded lecture from DMIMD 2023: NSPKU: National Society for Phenylketonuria – at 50: Past, Present and Future.

In this presentation from the Nutricia’s Dietary Management of Inherited Metabolic Disorders (DMIMD) 2023, Suzanne Ford, Dietitian Advisor for National Society for Phenylketonuria (NSPKU), discusses the history of Phenylketonuria (PKU) and the NSPKU. Suzanne mentions the resources available on the NSPKU website.

Timestamps

00:00 - Introduction

02:24 - PKU History

05:29 - NSPKU History & Advisory panel

06:15 - NSPKU Advisory Panel & Dietitians

11:02 - Resources

15:20 - NSPKU Initiatives to Support New Parents

20:21 - Research & Campaigns

26:24 - The Future

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